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Bridging the Research Data Divide: Rethinking long-term value and access for historical and contemporary maternal, infant and child research

Material Description

Summary

The collaborating libraries will create rich metadata for discovery, access, citation, and long-term preservation of maternal, infant, child, and youth health (MCH) research data. Work will focus on 1) historical paper and electronic research data for longitudinal studies, 1930-2010 (CLM), and 2) contemporary electronic research data for Canadian cohort and clinical trials from the Maternal, Infant, Child, Youth Research Network (UAL). This project will bring temporal depth in laying the groundwork for value-added long-term access to and preservation of the collections, while protecting the privacy of historical and current research participants and communities of study.

Program:

Digitizing Hidden Collections

Amount Awarded:

$367,602

Year Added:

2014

Institution

President and Fellows of Harvard College on behalf of the Harvard Medical School

Contact(s)

Ms. Kathryn Hammond Baker
Center for the History of Medicine, Francis A. Countway Library

Ms. Sharon Farnel
University of Alberta Libraries, University of Alberta


Collaborating Institution(s)

University of Alberta Libraries, 116 St. and 85 Ave., Edmonton, Alberta T6G 2R3 Canada

Date Range

1930 - 2014

Geographic Scope

Collections were created primarily in the United States and Canada. However, data for the Becker study was collected in the Republic of Fiji.

Materials

  • 135 Audio (Including Speech And Music), Dataset (Paper Based Or Electronic), Image, Manuscript, Specimen (Botanical, Geological, Medical, Etc.), Text (Including Electronic Texts)
  • 390 Audio (Including Speech And Music), Dataset (Paper Based Or Electronic), Image, Manuscript, Specimen (Botanical, Geological, Medical, Etc.), Text (Including Electronic Texts)